Day: September 18, 2022

support group

Gathering Support: Raising Awareness for Your Rare Disease

Rare diseases can be incredibly isolating experiences. According to the National Institutes of Health, “rare diseases (RD) are defined as those that affect fewer than 200,000 Americans at any given time.” That means people with a rare disease feel very alone in their experience. Moreover, rare diseases often don’t receive the same attention and research

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